INTERNSHIP DETAILS

Intern, Government Affairs and Policy

CompanyUltragenyx Pharmaceutical
LocationUnited States
Work ModeRemote
PostedApril 14, 2026
Internship Information
Core Responsibilities
The intern will research and track federal and state legislation related to rare disease policy and advocacy. They will also support trade association activities and assist the government affairs team with newborn screening issue analysis.
Internship Type
full time
Company Size
1536
Visa Sponsorship
No
Language
English
Working Hours
40 hours
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About The Company
Leading with purpose. Every day. “Ultragenyx was founded to advance innovative medicines for rare and ultrarare diseases that have never been treated before. We are delivering transformative therapies across multiple indications, and we have one of the most robust and diverse clinical pipelines in rare disease. Our focus is on doing the right things for patients both during development and commercialization to deliver on the promise of these therapies in a way that's meaningful for rare disease communities.” Emil D. Kakkis, M.D., Ph.D. Chief Executive Officer and President We have an inclusive culture of value and respect. Ultragenyx brings novel products to those living with rare and ultrarare diseases with a focus on debilitating genetic diseases. Founded in 2010, we have rapidly built a diverse portfolio of approved therapies and products aimed at diseases with a high unmet medical need for which many have no approved therapies. It takes courage, care, talent, and dedication to make a meaningful impact for those living with rare diseases, their families and the rare disease community. We put our people first, so they can take care of the rare disease community. We purposefully cultivate and nurture a dynamic, supportive work environment where we encourage every team member to share their new ideas and help us unlock more possibilities. Our team is made up of exceptional and diverse people with a strong passion and commitment to helping those living with rare diseases. By embracing generosity, curiosity, inclusion, and humility we are constantly learning together—fostering an environment that supports profound growth and fulfillment. If you want to have a meaningful impact, do the best work of your career while having fun and growing professionally and personally, come join our team! Visit our community guidelines at: https://ultragenyx.co/community
About the Role
Why Join Us?
 
Be a hero for our rare disease patients
 
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. 
 
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
 
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultraimpact – Make a difference for those who need it most

Ultragenyx is seeking a highly motivated individual to support our Legal Department-Policy, Government and Public Affairs team to continue developing communication materials to help tell our story to key global, federal, state and local policymakers. The ideal candidate demonstrates critical and solution based thinking skills, works collaboratively cross-departments and enjoys a dynamic environment.  This position will report to the Executive Director, Public Affairs.  

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

  • Research and track federal and legislation and summarize activity on key issues related to rare disease policy and advocacy 
  • Support trade association activity on a state and federal level, including gene therapy issue engagement 
  • Support state government affairs and molecular diagnostics team on newborn screening issues at the federal and state levels, including development of reports and issue analysis 

Requirements:

  • Current bachelor or Master’s degree in Business, Communications, Healthcare or Public Policy-related work 
  • Proficiency in MS applications such as Power Point, Word, and Excel 
  • Strong verbal communication skills 
  • Ability to write clearly and effectively 
  • Ability to manage vendor contractor activity on time-sensitive deadlines 
  • Exceptional teamwork and collaboration skills with internal colleagues and external vendors  

     

 
Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
 
·         Generous vacation time and public holidays observed by the company
·         Volunteer days
·         Long term incentive and Employee stock purchase plans or equivalent offerings
·         Employee wellbeing benefits
·         Fitness reimbursement
·         Tuition sponsoring
·         Professional development plans
 
* Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.

See our Privacy Policy.

It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation.  Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.
Key Skills
ResearchPolicy analysisAdvocacyCommunicationCritical thinkingSolution-based thinkingCollaborationProject managementMicrosoft PowerPointMicrosoft WordMicrosoft ExcelWritingVendor managementIssue analysis
Categories
Government & Public SectorHealthcareLegalAdministrativeScience & Research
Benefits
Generous vacation timePublic holidaysVolunteer daysLong term incentive plansEmployee stock purchase plansEmployee wellbeing benefitsFitness reimbursementTuition sponsoringProfessional development plans